Hemophilia and Inherited Bleeding Disorders

PV bleeding

04/21/2009

Question:

HI IAM 25 YRS OLD. ON SEPTEMBER 24 2008 I HAD AN EMERGENCY C SECTION FOR MY BABY GIRL. I HAD THE C SECTION AT 38 WEEKS BECAUSE IT WAS A PLANNED SURGERY BECAUSE OF A LARGE FIBRID I HAD GROWING WHICH BY THE END OF THE PREGNANCY WEIGHED 2 LITRES. AFTER THE PREGNANCY I HAVE NOT OFFICIALLY STOPPED BLEEDING UNTIL THIS TIME, I HAVE BEEN IN AND OUT OF HOSPITAL SEVERAL TIMES AND BEEN PUT ON A NUMEROUS AMOUNT OF PILLS. EVERYDAY I WAS GOING THROUGH A PACKET OF MATERNITY PADS EACH CONTAIN 16 PADS, AND ALSO THROUGH OUT THE DAY ALONG WITH THE HEAVY PERIOD I WAS LOOSING 5 TO 6 VERY LARGE BLOOD CLOTS EACH WEIGHING AROUND 500ML. THE 1 ST TIME I WENT TO THE HOSPITAL THE NURSE PUT ME ON TRANEXAMIC ACID 500 ALONG WITH MICRODYGEN 50 WHICH IS A FORM OF CONTRACEPTION, IT SLOWED THE BLEEDING DOWN BUT NEVER COMPLETLEY STOPPED, THEN AFTER 2 DAYS MY HAEVY BLEEDING CAME BACK. SO AFTER 1 WEEK I WENT BACK TO HOSPITAL, WHEN THE NURSE CHECKED MY BLOOD COUNT MY HEMOGLOBEN WAS DOWN TO 49 PERCENT, THE NURSE IMMEDIATLY TOLD ME I NEEDED 5 BLOOD TRANSFUSIONS WHICH BROUGHT MY BLOOD COUNT BACK UP TOO 100 PERCENT. THEY THEN SENT ME HOME WITH TANEXAMIC ACID AND LEVLEN 30 CONTRACEPTION, WHICH AGAIN WORKED FOR A WHILE BUT NEVER COMPLETLEY STOPPED THE BLEEDING BUT STOPPED THE BLOOD CLOTS FOR A FEW DAYS AND THEN MY BLEEDING CAME BACK WITH FULL FORCE. I COULD NOT GET ON WITH CARING FOR MY DAUGHTER WHEN I WAS CONSTANTLY IN THE TOILET CHANGING PADS AND CLEANING THE BATHROOM FLOOR BECAUSE AS SOON AS I WOULD TAKE OFF MY UNDERWEAR A LARGE CLOT WOULD JUST FALL OUT ONTO THR FLOOR AND I WOULD BLEED LIKE A RUNNING TAP. SO I AGAIN WENT TO THE HOSPITAL VERY UPSET AND DISTRESSED AND BLEEDING HEAVILY. THE NURSE THEN PUT ME A NEW CONTRACEPTION CALLED PROVERA 10MG ALONG WITH THE TRANEXAMIC ACID, SHE ADVISED ME TO TAKE 3-5 PROVERA DAILY AND TRANEXAMIC ACID 2 THREE TIMES A DAY, THAT WORKED FOR A COUPLE OF DAYS. AT THIS POINT I HAD HAD ENOUGH AND DID NOT BOTHER GOING BACK TO HOSPIATL AND CALLED UP THE GYNO AT THE HOSPITAL FOR ADVISE. SHE ADVISED ME TO TAKE A STRONGER MILOGRAM PROVERA SO I BOUGHT THE 100 MG PROVERA 3 TIMES A DAY AND TRANEXAMIC ACID 2 THREE TIMES A DAY. THIS HAS SLOWED THE BLEEDING TO THE POINT WHERE I CAN HANDLE FOR THE LAST MONTH BUT HAS NOT PROPERLY STOPPED, I HAVE AN APPOINTMENT WITH A GYNO SPECIALIST NEXT MONTH. WHAT OTHER OPTIONS ARE THEIR, IM DEPRESSED BECAUSE I HAVE BEEN WEARING A PAD FOR THE LAST 7 MONTHS AND CANT GET ON WITH BEING INTIMATE WITH MY HUSBAND, IT AFFECTS MY EVERYDAY LIFE. WHAT CAN I DO?

Answer:

Thank you for visiting NetWellness. On this site, NetWellness experts try to answer general questions about health. Only a health professional performing a thorough clinical exam is able to evaluate your symptoms. There are a number of causes for prolonged bleeding after having a baby. Inherited bleeding disorders is one of several possible causes. NetWellness does give an overview of inherited bleeding disorders that lists symptoms typically seen in people with these disorders. You might want to read over the Netwellness overview of inherited bleeding disorders. Then you might want to ask your healthcare provider if he/she thinks you that you should be tested for one of these disorders. You would want to tell them if you have had other problems with bleeding, or if other members of your family have had abnormal bleeding problems. Ask them to explain to you what they think is causing your problem, and why it has not gotten better.

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Response by:

Madeline Heffner, BSN, RN
Nurse Coord., UC Adult Hemophilia Treatment Center
Division of Hematology/Oncology
Department of Internal Medicine
College of Medicine
University of Cincinnati