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Bleeding and Clotting Disorders

Hemochromatosis and Low Iron

08/30/2011

Question:

Dear Sir or Madam: I am a hemochromatosis patient. My iron and saturation levels have recently fallen, and I have no idea why. Is it normal for iron levels in HH patients to be low and stay at a low rate? In addition, is it normal for HH patients to have low iodine levels?

Thank you.

Answer:

While it is not possible to comment on the specifics of your case in this forum, if you are on a phlebotomy program, that could affect these measurements.

In general what should be followed is the ferritin, with a goal for the ferritin to be approximately 100. The iron and iron saturation will be affected by a lot of other things, and therefore should not be routinely followed. Regarding the iodine, I am not aware of any connection between HH patients and iodine levels.  

For more information:

Go to the Bleeding and Clotting Disorders health topic, where you can:

Response by:

Spero R Cataland, MD Spero R Cataland, MD
Associate Professor of Clinical Internal Medicine
College of Medicine
The Ohio State University